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Domestic Violence: Improved Data Needed to Identify the Prevalence of Brain Injuries among Victims

GAO-20-534 Published: Jun 12, 2020. Publicly Released: Jun 12, 2020.
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Fast Facts

Brain injuries may be common in domestic violence victims, and such injuries may be under-diagnosed and under-treated. There is little federal data on the prevalence of this public health problem, so it’s uncertain whether federal resources are addressing it efficiently. We recommended that the Department of Health and Human Services improve data collection.

We also looked at nonfederal initiatives that focus on domestic-violence-related brain injury, including federal grants that support them. All of the initiatives and efforts provided education or training on the issue, while some provided screening and treatment.

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Highlights

What GAO Found

According to the Centers for Disease Control and Prevention (CDC), one in three adults have experienced domestic violence, also known as intimate partner violence. Intimate partner violence includes physical violence, sexual violence, stalking, and psychological aggression. Victims of intimate partner violence may experience brain injury, resulting from blows to the head or strangulation. To address this issue, the Department of Health and Human Services (HHS) and the Department of Justice (DOJ) provide grants to state and local entities that work with victims.

GAO identified 12 non-federal initiatives that provide education, screen for, or treat brain injuries resulting from intimate partner violence. All 12 developed and distributed education and training materials to domestic violence shelter staff, victims, health care providers, and others. Six of the 12 initiatives used screening tools to identify potential brain injuries among intimate partner violence victims, and two included a treatment component. Additionally, eight of the 12 initiatives received HHS or DOJ grant funding, although agency officials told us the funding had no specific requirements to address brain injuries resulting from intimate partner violence.

Excerpt of Educational Materials from Ohio Domestic Violence Network

Excerpt of Educational Materials from Ohio Domestic Violence Network

Based on its review of the literature, as well as interviews with HHS officials and other non-federal stakeholders, GAO found that data on the overall prevalence of brain injuries resulting from intimate partner violence are limited. HHS officials acknowledged that the lack of data on the prevalence of these issues is a challenge in addressing the intersection of the issues. However, HHS does not have a plan for how it would collect better prevalence data. HHS agencies have some related efforts underway; however, the efforts are limited and generally do not examine the connection between brain injuries and intimate partner violence. Enhancing the health and well-being of Americans is critical to HHS's public health mission. As part of this mission, CDC, within HHS, uses its Public Health Approach, which includes collecting prevalence data to understand the magnitude of public health issues.

With better data comes a better understanding of the overall prevalence of brain injuries resulting from intimate partner violence. This, in turn, could help ensure that federal resources are allocated to the appropriate areas and used as efficiently and effectively as possible to address this public health issue.

Why GAO Did This Study

Research has found brain injuries to be common among victims of intimate partner violence, and that such injuries are under-diagnosed and under-treated.

House Report 115-952 included a provision for GAO to report on the relationship between intimate partner violence and brain injuries. GAO (1) describes efforts to provide education, screen for, or treat brain injuries resulting from intimate partner violence; and (2) examines what is known about the prevalence of brain injuries resulting from intimate partner violence, including HHS efforts to determine prevalence. GAO reviewed peer-reviewed literature, federal websites, and documentation from HHS and DOJ. GAO also interviewed officials from HHS, DOJ, and 11 non-federal stakeholders, such as domestic violence organizations. GAO identified 12 initiatives, though this list may not be exhaustive, and conducted site visits to three of them.

Recommendations

HHS should develop and implement a plan to improve data collected on the prevalence of brain injuries resulting from intimate partner violence and use these data to inform its allocation of resources to address the issue. HHS concurred with our recommendation and is coordinating with its agencies to augment data collection.

Recommendations for Executive Action

Agency Affected Recommendation Status
Department of Health and Human Services The Secretary of HHS should develop and implement a plan to improve data collected on the prevalence of brain injuries resulting from intimate partner violence and use these data to inform HHS's allocation of resources to address the issue. (Recommendation 1)
Open – Partially Addressed
HHS concurred with our recommendation, and HHS continues to report steps taken in response to our recommendation that the Department develop and implement a plan to improve data the Department collects on the prevalence of brain injuries resulting from intimate partner violence. In its December 2024 update, HHS provided documentation showing the Department added an additional question to the Centers for Disease Control and Prevention's (CDC) National Intimate Partner and Sexual Violence Survey, which should improve estimates of the prevalence of traumatic brain injuries among victims of intimate partner violence, resulting from blows to the head or shaking of the brain. Further, CDC has begun research and testing to develop a survey measure that could be used to produce valid prevalence estimates of anoxic brain injury that can result from choking, strangulation, and other means of constricting a person's airway. According to officials, such research and testing are needed because there is not a validated question or set of questions assessing anoxic brain injury available in the field. In August 2024, CDC completed cognitive testing on a series of questions to assess anoxic brain injuries in order to evaluate the use of these questions in a national survey such as the NISVS survey. HHS officials told us they plan to use the results to inform future work and whether they will use these questions on surveys or other data collection instruments. Further, HHS officials told us the process of collecting a large enough data set to analyze and then use the analysis for policymaking purposes can occur over a number of years. Therefore, officials told us that using the data to inform HHS's allocation of resources to address the issue will evolve as new data is collected and analyzed. We will update this recommendation when we obtain more information regarding CDC's next steps and timeframes for its plan to test and validate a set of questions intended to improve data on the prevalence of traumatic and anoxic brain injuries among victims of intimate partner violence. Providing such information would be consistent with our recommendation that HHS develop and implement a plan to improve data collected on the prevalence of brain injuries resulting from intimate partner violence and use these data to inform HHS's allocation of resources to address the issue.

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Topics

Data collectionDomestic violenceGrant programsHealth careLaw enforcementPublic healthSexual violenceStalkingTraumatic brain injuryVictims of crimeViolence against womenWomen