This is the accessible text file for GAO report number GAO-11-735R 
entitled 'World Trade Center Health Program: Potential Effects of 
Implementation Options' which was released on August 4, 2011. 

This text file was formatted by the U.S. Government Accountability 
Office (GAO) to be accessible to users with visual impairments, as 
part of a longer term project to improve GAO products' accessibility. 
Every attempt has been made to maintain the structural and data 
integrity of the original printed product. Accessibility features, 
such as text descriptions of tables, consecutively numbered footnotes 
placed at the end of the file, and the text of agency comment letters, 
are provided but may not exactly duplicate the presentation or format 
of the printed version. The portable document format (PDF) file is an 
exact electronic replica of the printed version. We welcome your 
feedback. Please E-mail your comments regarding the contents or 
accessibility features of this document to Webmaster@gao.gov. 

This is a work of the U.S. government and is not subject to copyright 
protection in the United States. It may be reproduced and distributed 
in its entirety without further permission from GAO. Because this work 
may contain copyrighted images or other material, permission from the 
copyright holder may be necessary if you wish to reproduce this 
material separately. 

GAO-11-735R: 

United States Government Accountability Office: 
Washington, DC 20548: 

August 4, 2011: 

The Honorable Tom Harkin: 
Chairman: 
The Honorable Michael B. Enzi: 
Ranking Member: 
Committee on Health, Education, Labor, and Pensions: 
United States Senate: 

The Honorable Fred Upton: 
Chairman: 
The Honorable Henry A. Waxman: 
Ranking Member: 
Committee on Energy and Commerce: 
United States House of Representatives: 

Subject: World Trade Center Health Program: Potential Effects of 
Implementation Options: 

The James Zadroga 9/11 Health and Compensation Act of 2010 became law 
on January 2, 2011, and established a World Trade Center Health 
Program (WTCHP) to assume the functions of the World Trade Center 
(WTC) responder health programs beginning on July 1, 2011.[Footnote 
1], Footnote 2] From September 11, 2001, through fiscal year 2010, 
approximately $475 million in federal funds was made available for 
screening, monitoring, and treating WTC responders for illnesses and 
conditions related to the WTC disaster.[Footnote 3],[Footnote 4] These 
include asthma, persistent coughing, and other respiratory conditions 
and mental health conditions such as depression, anxiety, and post- 
traumatic stress disorder (PTSD). The three federal programs that 
provided screening, monitoring, and treatment services to responders 
prior to July 1, 2011, which we refer to here as the WTC responder 
health programs, were the New York City Fire Department's (FDNY) WTC 
Medical Monitoring and Treatment Program, the New York/New Jersey (NY/ 
NJ) WTC Consortium,[Footnote 5] and the WTC National Responder Health 
Program. The FDNY WTC program and the NY/NJ WTC Consortium provided 
services to WTC responders in the New York City (NYC) metropolitan 
area and each had a Data and Coordination Center (DCC) that was 
responsible for, among other things, collecting and analyzing clinical 
data for research on WTC-related health conditions. The WTC National 
Responder Health Program provided services to WTC responders outside 
the NYC area and did not have a DCC. The federal agency that was 
responsible for oversight of the three WTC responder health programs 
was the Centers for Disease Control and Prevention's (CDC) National 
Institute for Occupational Safety and Health (NIOSH) in the Department 
of Health and Human Services (HHS). According to NIOSH, as of March 
31, 2011, the WTC responder health programs had identified about 
55,000 WTC responders who were eligible for health services. 

The WTCHP is administered by HHS and provides screening, monitoring, 
and treatment services through contracted clinical centers in the NYC 
area for responders in that area and through a nationwide network of 
providers for responders outside the NYC area. In addition to these 
health services, the WTCHP is required to establish a program to pay 
for prescription drugs prescribed under the program and to contract 
with one or more data centers to coordinate patient outreach and, by 
analyzing claims data, conduct research on WTC-related health 
conditions. Although the Zadroga Act generally provides that the WTCHP 
is the primary payer for benefits for responders under the WTCHP, the 
act establishes the WTCHP as a secondary payer in certain 
circumstances.[Footnote 6] In May 2011, HHS delegated authority to the 
Centers for Medicare & Medicaid Services to provide payment services 
for the WTCHP. All other WTCHP activities will be administered by 
NIOSH. In April 2011, NIOSH issued a solicitation for clinical centers 
to provide health services to responders and a solicitation for one or 
more data centers to provide case management and increased capacity 
for analysis of responder health conditions; on July 1, 2011, NIOSH 
awarded contracts to six clinical centers and two data centers. 
[Footnote 7] The Zadroga Act established the WTCHP Fund and provided 
appropriations for the federal share of expenditures for each of 
fiscal years 2012 through 2016, as well as the last calendar quarter 
of fiscal year 2011, totaling a maximum of $1.6 billion.[Footnote 8] 

The Zadroga Act requires us to study feasibility, efficiency, and 
effectiveness issues related to the WTCHP established by the act, 
including the WTCHP's potential use of one consolidated data center 
rather than multiple data centers, the potential use of Department of 
Veterans Affairs (VA) health care facilities to serve WTC responders 
outside the NYC area, and the potential use of an existing federal 
prescription drug purchasing program to provide prescription drugs for 
all WTC responders.[Footnote 9] The act expressly authorizes (but does 
not require) the WTCHP to enter into an agreement with VA to provide 
WTCHP services to responders living outside the NYC area through VA 
facilities. However, the act does not expressly authorize an agreement 
with a federal prescription drug purchasing program to provide 
prescription drugs to WTC responders. In this report, we identify 
potential effects of (1) creating a consolidated data center for the 
WTCHP, (2) using VA facilities to provide WTCHP services to responders 
living outside the NYC area, and (3) using an existing federal 
prescription drug purchasing program for the WTCHP. 

To identify potential effects of creating a consolidated data center 
for the WTCHP, we interviewed DCC, NIOSH, and WTC Steering Committee 
officials who were involved with managing or overseeing the DCCs. 
[Footnote 10] To obtain additional information about the two DCCs and 
the potential effects of consolidation, we also reviewed documents 
related to the DCCs, including progress reports and clinical 
instruments used for data collection, relevant provisions of the 
Zadroga Act, our prior reports, and documents describing initiatives 
for consolidating federal data centers. 

To identify potential effects of using VA facilities to provide WTCHP 
services to responders living outside the NYC area, we interviewed 
officials involved in implementing or overseeing the WTC National 
Responder Health Program, including officials from Logistics Health, 
Incorporated (LHI), the contractor that has been responsible for 
implementing the program.[Footnote 11] We also interviewed VA 
officials knowledgeable about the provision of health services for 
individuals served by VA. We reviewed relevant documents related to 
WTC National Responder Health Program operations and to the provision 
of VA health services, such as VA directives. 

In addition, we calculated the percentages of WTC responders living 
outside the NYC area who resided within certain designated distances 
of a VA facility by analyzing ZIP code data on the locations of WTC 
responders' residences and the locations of relevant VA facilities, 
including VA medical centers (VAMC), community-based outpatient 
clinics (CBOC), and independent outpatient clinics (IOC).[Footnote 12] 
The data for WTC responders' residential locations were provided by 
the NY/NJ WTC Consortium DCC, the entity that managed recruitment for 
the WTC National Responder Health Program. According to the DCC's 
database, as of March 19, 2011, 4,621 of the approximately 53,000 WTC 
responders are known to reside outside the NYC area, including in 
locations outside the country. The data for the locations of VA 
facilities were provided by VA and included ZIP codes for 150 VAMCs, 
739 CBOCs, and 5 IOCs in the United States. Our analysis has several 
limitations. First, there was no way to determine whether the VA 
facilities in the ZIP codes nearest the responders' ZIP codes would 
have the appropriate expertise or space available to provide services 
in the future. Second, the analysis does not account for the precise 
residential location of a responder in a ZIP code; distances were 
calculated from the geographic center of a ZIP code in which a 
responder resides to the geographic center of a ZIP code in which a VA 
facility is located.[Footnote 13] Finally, the accuracy of the ZIP 
code data was not verified. We assessed the reliability of the ZIP 
code level data by interviewing knowledgeable DCC and VA officials, 
and we determined that the data were sufficiently reliable for our 
purposes. 

To identify potential effects of using an existing federal 
prescription drug purchasing program for the WTCHP, we interviewed 
officials from the WTC responder health programs and NIOSH who were 
involved in implementing or overseeing the programs' seven 
prescription drug plans.[Footnote 14] We limited our scope to the 
following federal prescription drug purchasing programs: VA's drug 
purchasing program; TRICARE, the Department of Defense's (DOD) health 
care program; and HHS's 340B Drug Pricing Program.[Footnote 15], 
[Footnote 16] We interviewed officials from VA; DOD; and HHS's Health 
Resources and Services Administration (HRSA), which administers the 
340B Drug Pricing Program. We reviewed documents related to the WTC 
responder health programs' prescription drug plans and the federal 
drug purchasing programs, including drug plan information provided to 
beneficiaries and drug formularies.[Footnote 17] In addition, we 
obtained from each of the WTC prescription drug plans the names of the 
10 prescription drugs most frequently used by WTC responders covered 
by each plan in 2010. The top 10 lists for the seven plans yielded a 
total of 29 prescription drugs. We then determined which of the 29 
drugs were on the formularies used by VA and TRICARE and were 
available through the 340B program.[Footnote 18] 

We conducted this performance audit from March 2011 to August 2011, in 
accordance with generally accepted government auditing standards. 
Those standards require that we plan and perform the audit to obtain 
sufficient, appropriate evidence to provide a reasonable basis for our 
findings and conclusions based on our audit objectives. We believe 
that the evidence obtained provides a reasonable basis for our 
findings and conclusions based on our audit objectives. 

Results in Brief: 

Creating a consolidated data center could lead to cost savings and 
enhanced research opportunities; however, consolidation could require 
upfront expenditures. In addition, establishing a consolidated data 
center could result in a loss of responders' clinical data from the 
WTCHP because of the potential need to have responders sign new 
consent forms to enable use of their data for research. Responders 
provided consent to their respective clinical centers to send their 
clinical data to the center's DCC for research purposes, and existing 
consent might not authorize the use of such data by a consolidated 
data center. Responders might be unavailable or unwilling to provide 
consent again. Although most WTC responders outside the NYC area live 
near a VA facility, the use of VA facilities for the WTCHP could 
affect access to health services for WTC responders because not all 
types of clinical expertise are available at all VA facilities, VA 
facilities do not always have space available to serve nonveterans, 
and it would take an undetermined length of time to implement an 
agreement between VA and HHS. The use of VA facilities for the WTCHP 
could also affect enrollment retention because WTC responders might 
need to change health care providers. Providing prescription drugs to 
WTC responders through an existing federal prescription drug 
purchasing program could reduce drug prices. It might also affect the 
availability of options for filling prescriptions and responders' 
access to certain prescription drugs. In addition, VA and DOD 
officials told us that use of their respective drug purchasing 
programs for WTC responders would require administrative changes to 
their programs. In written comments, DOD concurred with a draft of 
this report. HHS and VA provided technical comments, which we 
incorporated as appropriate. 

Background: 

Within HHS, NIOSH awarded funds to and oversaw the WTC responder 
health programs. Beginning in 2001, the FDNY WTC program and the NY/NJ 
WTC Consortium received federal funding to provide services to 
responders. The programs began as screening and monitoring programs, 
tracking the health status of WTC responders. In December 2005, the 
Congress first appropriated funds specifically for treatment programs 
for certain responders with health conditions related to the WTC 
disaster,[Footnote 19] and in fall 2006 NIOSH began awarding funds for 
outpatient and inpatient treatment. NIOSH contracted with LHI in 2008 
to implement the WTC National Responder Health Program.[Footnote 20] 
According to NIOSH, of the almost 55,000 eligible responders, about 
49,000 had been screened as of March 31, 2011, by the three WTC 
responder health programs;[Footnote 21] from April 1, 2010, to March 
31, 2011, about 27,000 were monitored and about 16,000 were treated. 
[Footnote 22] 

DCCs: 

In 2004, NIOSH entered into cooperative agreements with two DCCs to 
provide data management and coordination for the two largest WTC 
responder health programs, which are located in the NYC area. The FDNY 
Bureau of Health Services operated the DCC for the FDNY WTC program, 
and the Mount Sinai School of Medicine operated the DCC for the NY/NJ 
WTC Consortium.[Footnote 23] According to NIOSH's original request for 
applications in 2003, the two DCCs were to be responsible for 
monitoring the quality and quantity of data received from their 
respective clinical centers, maintaining an electronic clinical data 
entry tool, analyzing clinical data, providing reports to NIOSH, and 
coordinating outreach and patient follow-up. The FDNY DCC provided 
services to active duty FDNY firefighters, emergency medical services 
personnel, civilian volunteers, and retired nonactive duty FDNY 
firefighters; the Consortium DCC provided services to a more 
heterogeneous group of WTC responders, including police officers, 
sanitation workers, construction workers, transit workers, a wide 
range of volunteers, and active duty and retired firefighters who 
responded from locations outside the NYC area. The cooperative 
agreements between NIOSH and the DCCs ended on June 30, 2011. 

Under the Zadroga Act, the WTCHP is required to contract with one or 
more data centers to collaborate with the clinical centers that will 
be providing services to WTC responders in the NYC metropolitan area, 
[Footnote 24] and on July 1, 2011, NIOSH awarded contracts to two data 
centers; the two data centers are the same entities that served as the 
DCCs for the FDNY WTC program and the NY/NJ WTC Consortium. The WTCHP 
data centers will continue the activities of the WTC responder health 
programs' DCCs in addition to new activities. The responsibilities for 
each WTCHP data center include analyzing and reporting on claims data; 
coordinating with corresponding clinical centers to obtain input on 
the analysis and reporting of data collected; developing protocols for 
screening, monitoring, and treatment; coordinating outreach 
activities; and establishing criteria for the credentialing of medical 
providers. 

We have previously reported on the data collection efforts of WTC 
responder health programs[Footnote 25] and on federal data centers in 
general, including the opportunity to increase government efficiency 
through consolidating such centers.[Footnote 26] In February 2010, the 
Office of Management and Budget launched the Federal Data Center 
Consolidation Initiative (FDCCI) to increase government efficiency. 
[Footnote 27] The FDCCI is a governmentwide effort to consolidate more 
than 2,000 federal government data centers. We have identified 
challenges or potential effects of consolidation in ongoing reviews of 
this initiative.[Footnote 28] 

Health Care Services for WTC Responders Residing outside the NYC Area: 

Since June 2008, NIOSH has contracted with LHI to provide screening, 
monitoring, and treatment services to WTC responders who live outside 
the NYC metropolitan area.[Footnote 29] Although the WTC National 
Responder Health Program did not have a DCC and does not have a data 
center, LHI is responsible for tracking and reporting responder 
information based on claims data. LHI has been providing monitoring 
services to WTC responders through its national network of providers, 
and LHI subcontracts with United Medical Resources (UMR) to provide 
responders with access to treatment services through 
UnitedHealthcare's provider network.[Footnote 30] The base year of the 
current contract between NIOSH and LHI ends on September 29, 2011, and 
the contract allows for NIOSH to exercise an option to renew the 
contract for each of the following four fiscal years. See figure 1 for 
a map of residential locations of WTC responders residing outside the 
NYC area. 

Figure 1: World Trade Center (WTC) Responders Residing outside the New 
York City (NYC) Metropolitan Area, by County and by State (as of March 
19, 2011): 

[Refer to PDF for image: illustrated U.S. map] 

Alabama: 34; 
Alaska: 26; 
Arizona: 93; 
Arkansas: 21; 
California: 331; 
Colorado: 90; 
Connecticut: 53; 
Delaware: 13; 
District of Columbia: 25; 
Florida: 711; 
Georgia: 121; 
Hawaii: 10; 
Idaho: 8; 
Illinois: 129; 
Indiana: 56; 
Iowa: 13; 
Kansas: 20; 
Kentucky: 26; 
Louisiana: 20; 
Maine: 19; 
Maryland: 109; 
Massachusetts: 14; 
Michigan: 48; 
Minnesota: 31; 
Mississippi: 14; 
Missouri: 43; 
Montana: 8; 
Nebraska: 26; 
Nevada: 45; 
New Hampshire: 19; 
New Jersey: 43; 
New Mexico: 38; 
New York: 723; 
North Carolina: 194; 
North Dakota: 8; 
Ohio: 14; 
Oklahoma: 16; 
Oregon: 48; 
Pennsylvania: 205; 
Rhode Island: 38; 
South Carolina: 80; 
South Dakota: 6; 
Tennessee: 42; 
Texas: 138; 
Utah: 36; 
Vermont: 9; 
Virginia: 164; 
Washington: 77; 
West Virginia: 19; 
Wisconsin: 34; 
Wyoming: 4. 

Source: GAO analysis of data provided by the New York/New Jersey 
(NY/NJ) WTC Consortium’s data and coordination center (DCC). 

Note: The NY/NJ WTC Consortium's DCC, which was operated by the Mount 
Sinai School of Medicine, managed recruitment for the WTC National 
Responder Health Program. According to its database, 4,621 WTC 
responders are known to reside outside the NYC metropolitan area, 
including in locations outside the country. As of March 19, 2011, the 
DCC's database included ZIP codes and states for 4,368 of the 4,621 
WTC responders; ZIP codes and states were not available for 211 
responders, and 42 responders reside outside the country or in Guam, 
Puerto Rico, or the Virgin Islands. The map represents the locations, 
by county, for 4,365 of the responders living outside the NYC 
metropolitan area, but within the country; the counties for 3 
responders were not available because we could not match the 
responders' ZIP codes with counties. The differences in the sizes of 
the counties are geographical only and do not reflect the number of 
responders in each county. 

[End of figure] 

The Zadroga Act requires the WTCHP to provide services to WTC 
responders outside the NYC area through a national network of 
providers, and permits HHS to enter into an agreement with VA to 
provide these services in VA facilities.[Footnote 31] The 
responsibilities of the WTCHP's national network of providers under 
the act will be similar to the responsibilities of the national 
network of providers in the WTC National Responder Health Program. In 
addition to providing services to veterans, VA provides health 
services to certain civilians through its Civilian Health and Medical 
Program of the Department of Veterans Affairs (CHAMPVA) program, which 
is primarily a fee-for-service program that provides coverage for 
certain eligible dependents or survivors of veterans who are 
permanently and totally disabled because of a service-connected 
disability. Veterans generally have higher priority for services in VA 
facilities than do nonveterans;[Footnote 32] CHAMPVA beneficiaries are 
eligible to receive health services in most VA facilities, but only on 
a space-available basis. 

Prescription Drug Plans: 

Prior to July 1, 2011, the WTC responder health programs included 
seven different prescription drug plans, each of which used program 
funds to provide responders with full coverage for prescription 
medications listed on a formulary. The seven plans were associated 
with the FDNY WTC program, the five clinical centers in the NY/NJ WTC 
Consortium, and the WTC National Responder Health Program. Generally, 
the prescription drug plans independently contracted with a pharmacy 
benefit manager (PBM) to purchase and distribute prescription drugs to 
its beneficiaries.[Footnote 33] In 2010, the WTC responder health 
programs' prescription drug plans filled over 140,000 prescriptions at 
a cost of $25.3 million. WTC responders paid no premiums or copayments 
for drugs to treat WTC-related health conditions. Depending on the WTC 
prescription drug plan, responders could obtain their drugs through a 
mail order pharmacy, network retail pharmacy, or in-house pharmacy 
located in their clinic. 

The Zadroga Act requires the WTCHP to establish a program to pay for 
medically necessary outpatient prescription drugs prescribed for WTC- 
related health conditions.[Footnote 34] According to a NIOSH official, 
starting on July 1, 2011, NIOSH began using a single PBM to administer 
the prescription drug benefit for all of the WTCHP responders in the 
NYC area. A NIOSH official told us that prescription drugs for WTC 
responders residing outside the NYC area will continue to be provided 
through the LHI contract in the near term. 

The federal government operates several prescription drug purchasing 
programs[Footnote 35]--including VA's drug purchasing program, DOD's 
TRICARE, and HRSA's 340B Drug Pricing Program--which receive prices 
that are typically lower than those otherwise available. VA and 
TRICARE provide drug benefits for eligible beneficiaries by purchasing 
and distributing prescription drugs. The 340B Drug Pricing Program 
gives enrolled entities access to discounted drug prices, called 340B 
ceiling prices, and gives them the option to contract with a prime 
vendor, which can negotiate discounts with manufacturers at or below 
the mandatory 340B ceiling price. 

VA's drug purchasing program includes a national formulary to help 
standardize veterans' access to medications across the country. 
[Footnote 36] The formulary includes drugs that generally must be 
prescribed by a VA provider and filled through VA's mail order 
pharmacy or at a VA pharmacy. VA pays the lowest of several prices 
available for a given drug and can negotiate with suppliers to receive 
additional discounts. 

DOD's prescription drug benefit is provided to active duty and retired 
uniformed service members and their families through TRICARE. In 2005, 
DOD implemented a uniform formulary that includes drugs prescribed for 
TRICARE beneficiaries by providers at military treatment facilities 
and by outside providers. Beneficiaries can obtain their medications 
through TRICARE's mail order pharmacy, network retail pharmacies, 
nonnetwork retail pharmacies, and military treatment facilities. Like 
VA, TRICARE pays the lowest of several prices and can receive 
additional discounts through negotiation with suppliers. 

HRSA's 340B Drug Pricing Program gives access to discounted drug 
prices to enrolled entities that provide services to low-income and 
other individuals who experience barriers gaining access to care. 
[Footnote 37] The 340B Drug Pricing Program enables enrolled entities 
to stretch federal resources so that they can serve additional 
eligible patients and provide more comprehensive services. In order to 
have their drugs covered by Medicaid, drug manufacturers must agree to 
charge entities that participate in the 340B program prices that do 
not exceed an amount determined by statutory formula. Enrolled 
entities establish their own formularies and may dispense drugs 
through in-house pharmacies, contracted retail pharmacies, or both. 
[Footnote 38] 

Creating a Consolidated Data Center Could Reduce Costs and Enhance 
Research, but Would Require Upfront Investment and Might Adversely 
Affect Enrollment Retention: 

Creating a Consolidated Data Center Has Potential for Cost Savings and 
Enhanced Research, but Upfront Investment Would Be Needed: 

Creating a consolidated data center could lead to cost savings, such 
as by reducing duplicative staff positions for data management and 
analysis. The FDNY and Consortium DCCs conducted similar activities 
related to the collection and maintenance of data, such as data 
monitoring, data cleaning, and the preparation of quality assurance 
reports. According to Consortium DCC officials, the DCC monitored, for 
example, types and dates of clinical visits by responders and 
regularly conducted data cleaning as part of its quality assurance 
efforts in generating required reports for NIOSH. FDNY's DCC worked on 
similar data-and quality-assurance-related tasks, such as revising 
patient questionnaires and data cleaning. In a consolidated data 
center, such activities would be conducted by a single entity, which 
could result in cost savings due to reduced duplication of effort. 
Such savings have been projected for other data center consolidations. 
For example, according to the federal interagency Chief Information 
Officers Council--which was established to improve agency practices 
related to the development and implementation of federal information 
resources--the FDCCI would likely lead to cost savings through the 
reduction of redundant and duplicative information technology projects 
and infrastructure.[Footnote 39] 

Using a consolidated data center could also enhance opportunities to 
conduct research on health effects by increasing the number of WTC 
responders whose information is in the data set and available for 
analysis. The FDNY and Consortium DCCs maintained separate data sets 
for their respective groups of WTC responders. The single, merged data 
set that would result from a consolidated data center could facilitate 
enhanced epidemiologic research because this larger data set would 
likely allow researchers to perform analyses that would not be 
possible with smaller data sets. For example, researchers could more 
effectively study conditions that are experienced by WTC responders 
less frequently, such as cancer and pulmonary fibrosis, including the 
efficacy of treatments for such conditions. 

Before cost savings can be realized, however, consolidation could 
require upfront expenditures, including investments in information 
technology systems. A NIOSH official said there would be upfront costs 
associated with merging the FDNY and Consortium DCCs' responder 
population data sets. For example, the two DCCs had different 
information technology systems for collecting clinical data. Creation 
of a consolidated data center could result in the need to invest in 
standardizing information technology systems. In our 2011 report on 
opportunities to reduce potential duplication in government, we noted 
that there are upfront costs associated with data center consolidation 
in the FDCCI.[Footnote 40] We also reported that although data center 
consolidation could achieve more efficient information technology 
operations, upfront funding would be needed for the consolidation 
effort long before any cost savings could accrue.[Footnote 41], 
[Footnote 42] 

Effort to Create a Consolidated Data Center Could Result in a Loss of 
Responders and Data from the WTCHP: 

Establishing a consolidated data center could create a need for a new 
consent process to enable the center to use responders' previously 
collected data and collect future data. Responders provided consent to 
their respective clinical centers to send their clinical data to the 
center's DCC for research purposes, and according to Consortium 
officials, existing consent may not authorize the use of such data by 
a consolidated data center. For example, Consortium officials told us 
that if the clinical centers have to transfer clinical data to a 
consolidated data center that is an entity different from the DCC to 
which they are already sending data, each responder would have to sign 
a new consent form. The officials said that responders might be 
unavailable or unwilling to provide consent again. This could lead to 
decreased enrollment retention. If retention declines, the WTCHP could 
lose access to responder data.[Footnote 43] Such a loss of data could 
pose a problem for the WTCHP, because one of the major goals of the 
WTCHP is to conduct research on responders to inform the provision of 
care for conditions resulting from exposure during the WTC disaster. 

In addition to the need for a new consent process, potential 
resistance from stakeholder organizations and WTC responders, 
resulting in part from long-standing professional loyalties, could 
affect the success of a consolidated data center. We previously 
reported that a potential challenge to creating a consolidated data 
center is overcoming cultural resistance to major organizational 
change.[Footnote 44] WTC officials said that the FDNY and Consortium 
DCC organizations and responders have unique identities and loyalties. 
For example, FDNY DCC officials attributed their high rate of 
responder retention to the fact that they maintained an 
employer/employee-based WTC program and the FDNY responders identify 
closely with the FDNY institution. FDNY DCC officials told us that 
responders were significantly more willing to accept the program's 
outreach through telephone calls the responders knew originated from 
the FDNY in comparison with calls where they did not recognize the 
caller's telephone number. If NIOSH chooses to use a consolidated data 
center, buy-in from stakeholders--including organizations providing 
services to WTC responders, unions, and respective groups of 
responders--would be critical. 

According to DCC officials, the creation of a consolidated data center 
could also disrupt the close relationships and bonds of trust that 
have been developed over the past decade among the DCCs, the clinical 
centers, and their respective groups of responders. The officials 
believe these bonds are important for outreach and retention. As part 
of their scope of activities, the DCCs were involved in the programs' 
outreach efforts, either directly or by supporting the efforts of the 
clinical centers. For example, the Consortium DCC employed several 
outreach strategies targeting responders, including issuing quarterly 
newsletters, sending e-mails with relevant stories from the press, 
organizing conferences, and translating materials into multiple 
languages. Consortium DCC officials told us that nothing replaced the 
value of a responder having face-to-face contact with a familiar 
institution and that one of the Consortium DCC's key outreach 
strategies was to have staff in the community maintain direct contact 
with responders. DCC officials observed that for a consolidated data 
center to be successful in maintaining responder retention, it would 
have to establish strong relationships with the clinical centers and 
responders. 

Using VA Facilities to Provide WTCHP Services outside NYC Area Could 
Affect Access and Enrollment Retention: 

Most WTC Responders outside NYC Area Live Near a VA Facility: 

Most WTC responders outside the NYC area live near a VA facility. 
About 61 percent of the WTC responders outside the NYC area (2,665 of 
the 4,368 in the NY/NJ WTC Consortium DCC database)[Footnote 45] 
reside less than 30 miles from a VAMC, and about 90 percent (3,947 of 
the 4,368) reside less than 30 miles from a CBOC.[Footnote 46] Figure 
2 shows the percentages of responders outside the NYC area living 
within certain designated distances of VAMCs and CBOCs. 

Figure 2: Percentages of the World Trade Center (WTC) Responders 
outside the New York City (NYC) Area Living within Designated 
Distances of Department of Veterans Affairs (VA) Medical Facilities: 

[Refer to PDF for image: vertical bar graph] 

Distance (miles): 0-14; 
VA medical center: 36%; 
VA community-based outpatient clinic: 65%. 

Distance (miles): 15-29; 
VA medical center: 25%; 
VA community-based outpatient clinic: 25%. 

Distance (miles): 30-44; 
VA medical center: 14%; 
VA community-based outpatient clinic: 6%. 

Distance (miles): 45-59; 
VA medical center: 8%; 
VA community-based outpatient clinic: 2%. 

Distance (miles): 60-74; 
VA medical center: 5%; 
VA community-based outpatient clinic: 1%. 

Distance (miles): 75 and over; 
VA medical center: 12%; 
VA community-based outpatient clinic: 0%. 

Source: GAO analysis of data provided by the New York/New Jersey 
(NY/NJ) WTC Consortium’s data and coordination center (DCC)and VA. 

Note: The NY/NJ WTC Consortium's DCC, which was operated by the Mount 
Sinai School of Medicine, managed recruitment for the WTC National 
Responder Health Program. According to its database, 4,621 WTC 
responders are known to reside outside of the NYC metropolitan area, 
including in locations outside the country. As of March 19, 2011, the 
DCC's database included residential locations (including ZIP codes and 
states) for 4,368 of those 4,621 WTC responders. As of September 30, 
2010, VA's database included 150 VA medical centers and 739 VA 
community-based outpatient clinics (CBOC) located in the United 
States, as well as the locations for 5 VA independent outpatient 
clinics (IOC) also located in the United States. For this analysis, we 
included the IOCs with the CBOCs. Percentages in figure for CBOCs do 
not add to 100 due to rounding. 

[End of figure] 

Using VA Facilities for WTCHP Could Affect Access: 

Use of VAMCs and CBOCs for the WTCHP could affect access to health 
services for WTC responders--whether veterans or nonveterans--because 
not all types of clinical expertise are available at all VA 
facilities. According to VA officials, many VA providers have 
treatment expertise in disorders that may be experienced by 
responders, such as pulmonary diseases and PTSD, but certain 
specialists are less frequently employed by CBOCs. For example, all 
VAMCs provide PTSD specialty care on site, but CBOCs are less likely 
to provide these services on site. VA officials told us that it may be 
possible for responders who do not live near a VA facility with on-
site PTSD specialty care to use telehealth services.[Footnote 47] 

VA facilities do not always have space available to serve nonveterans, 
so using these facilities for the WTCHP could have an effect on access 
for those WTC responders who are not veterans. VA officials told us 
that each VAMC periodically (at least annually) assesses whether it, 
or its associated CBOCs, has space available to provide any health 
services to nonveterans. VAMCs conduct periodic assessments for each 
type of health service they provide to veterans, and these assessments 
may result in expansions or reductions of health services for 
nonveterans in the medical center or in its associated CBOCs. VA 
officials told us that it may be possible to establish an agreement 
with HHS for the WTCHP's use of VA facilities that would allow WTC 
responders to obtain treatment services in all VA facilities, 
regardless of the space available to serve nonveterans. 

Access to WTCHP services could also be affected by the length of time 
needed to take the administrative actions necessary to implement an 
agreement between VA and HHS. VA officials told us that the length of 
time needed would depend on the extent of administrative action--such 
as developing a process for WTCHP to reimburse VA for services it 
provides or for hiring new staff--that would be needed. 

Responders' Need to Change Providers Could Affect Enrollment Retention: 

The use of VA facilities for the WTCHP could affect enrollment 
retention. WTC responders living outside the NYC area would have to 
switch from providers in the LHI and UnitedHealthcare networks to 
providers in VA facilities.[Footnote 48] NIOSH officials expressed 
concern that some responders might choose to no longer participate in 
the WTCHP because of a reluctance to discontinue seeing providers with 
whom they have an established relationship. Officials said they were 
especially concerned about mental health care because developing an 
effective relationship between a patient and a mental health provider 
can be a sensitive process. 

Providing Prescription Drugs to WTC Responders through an Existing 
Federal Prescription Drug Purchasing Program Could Reduce Drug Prices, 
but Might Affect Access: 

Use of an Existing Federal Prescription Drug Purchasing Program Could 
Result in Lower Drug Prices for the WTCHP: 

Use of VA's drug purchasing program, TRICARE, or the 340B program 
could result in lower prescription drug prices for the WTCHP. Prices 
available to VA and TRICARE and through the 340B program are typically 
lower than those otherwise available. For example, VA and DOD, along 
with the Public Health Service and the U.S. Coast Guard, have access 
to federal ceiling prices, also called Big Four prices, which are 
based on calculations prescribed by statute and generally are at least 
24 percent lower than nonfederal average manufacturer prices.[Footnote 
49] According to HRSA's Web site, participation in the 340B program 
results in significant savings --estimated to be 20 percent to 50 
percent--on the cost of outpatient prescription drugs for enrolled 
entities. None of the seven WTC prescription drug plans that existed 
before July 1, 2011, received the special prescription drug prices 
available to these programs, and a NIOSH official told us NIOSH has 
not investigated participation in federal purchasing programs in 
detail, but expects to do so during the course of the program's first 
year of operation.[Footnote 50] VA officials were uncertain whether 
legal authority exists to extend the lower pricing available to VA to 
the WTCHP if it used VA's program to provide prescription drugs to 
responders. In addition, VA officials told us that, in the past, drug 
manufacturers challenged an attempt by another federal agency to 
extend VA's negotiated prices to nonveteran populations. DOD officials 
said that current authority would not allow DOD to obtain lower 
pricing for prescription drugs provided to WTC responders at retail 
pharmacies. DOD officials were unsure whether legal authority exists 
to extend the lower pricing to the WTCHP for prescription drugs 
provided through DOD's mail order pharmacy. According to a HRSA 
official, legislation would be needed to provide authority for the 
WTCHP to become eligible to participate in the 340B program. 

Use of an Existing Federal Prescription Drug Purchasing Program Might 
Change Responders' Options for Filling Prescriptions: 

Options for filling prescriptions varied among the WTC prescription 
drug plans that were in place before July 1, 2011, and included mail 
order, network retail pharmacy, and in-house pharmacy. In 2010, four 
of the plans offered responders more than one option for filling 
prescriptions. (See table 1 for the options in 2010 for filling 
prescriptions.) According to a NIOSH official, the WTCHP will provide 
all WTC responders in the NYC area with at least two options for 
obtaining their medications--mail order and retail pharmacies. 
[Footnote 51] 

Table 1: Options for Filling Prescriptions under Each of the WTC 
Prescription Drug Plans, in 2010: 

WTC prescription drug plan: Center for the Biology of Natural Systems 
at CUNY, Queens College[A]; 
Options for filling prescriptions: Mail order pharmacy: [Empty]; 
Options for filling prescriptions: Network retail pharmacy: [Check]; 
Options for filling prescriptions: In-house pharmacy: [Empty]. 

WTC prescription drug plan: Long Island Occupational and Environmental 
Health Center at SUNY, Stony Brook[A]; 
Options for filling prescriptions: Mail order pharmacy: [Check]; 
Options for filling prescriptions: Network retail pharmacy: [Empty]; 
Options for filling prescriptions: In-house pharmacy: [Empty]. 

WTC prescription drug plan: Mount Sinai School of Medicine[A]; 
Options for filling prescriptions: Mail order pharmacy: [Check]; 
Options for filling prescriptions: Network retail pharmacy: [Check]; 
Options for filling prescriptions: In-house pharmacy: [Empty]. 

WTC prescription drug plan: New York City Fire Department's (FDNY) WTC 
Medical Monitoring and Treatment Program; 
Options for filling prescriptions: Mail order pharmacy: [Check]; 
Options for filling prescriptions: Network retail pharmacy: [Check]; 
Options for filling prescriptions: In-house pharmacy: [Empty]. 

WTC prescription drug plan: New York University School of Medicine/ 
Bellevue Hospital Center[A]; 
Options for filling prescriptions: Mail order pharmacy: [Check]; 
Options for filling prescriptions: Network retail pharmacy: [Empty]; 
Options for filling prescriptions: In-house pharmacy: [Check]. 

WTC prescription drug plan: University of Medicine and Dentistry of 
New Jersey Robert Wood Johnson Medical School, Environmental and 
Occupational Health Sciences Institute[A]; 
Options for filling prescriptions: Mail order pharmacy: [Empty]; 
Options for filling prescriptions: Network retail pharmacy: [Check]; 
Options for filling prescriptions: In-house pharmacy: [Empty]. 

WTC prescription drug plan: WTC National Responder Health Program; 
Options for filling prescriptions: Mail order pharmacy: [Check]; 
Options for filling prescriptions: Network retail pharmacy: [Check]; 
Options for filling prescriptions: In-house pharmacy: [Empty]. 

Source: GAO analysis of information from WTC prescription drug plans. 

Note: The seven prescription drug plans in place prior to July 1, 
2011, were associated with the three WTC responder health programs. 
The New York/New Jersey (NY/NJ) WTC Consortium consisted of five 
clinical centers, each of which had its own prescription drug plan. 
The other two plans were associated with the FDNY WTC Medical 
Monitoring and Treatment Program and the WTC National Responder Health 
Program. 

[A] A NY/NJ WTC Consortium clinical center. 

[End of table] 

Options for filling prescriptions vary among the existing federal 
prescription drug purchasing programs, and WTCHP's use of any of these 
programs might change responders' options for filling prescriptions. 
VA beneficiaries may obtain drugs prescribed by VA providers only at a 
VA pharmacy or through VA's mail order pharmacy and generally do not 
have the option to use retail pharmacies.[Footnote 52] If the WTCHP 
used VA's drug purchasing program, some responders would have to 
discontinue their use of retail or in-house pharmacies and begin using 
mail order or obtain prescriptions at VAMCs or CBOCs. In contrast, 
TRICARE currently offers mail order and network and nonnetwork retail 
pharmacy options to its beneficiaries, and the 340B Drug Pricing 
Program allows for the use of in-house pharmacies and contract retail 
and mail order pharmacies. WTCHP's use of either of these programs 
would likely expand the number of access options for some responders 
in comparison to the options offered by their WTC prescription drug 
plans. 

Use of an Existing Federal Prescription Drug Purchasing Program Might 
Affect Responders' Access to Certain Prescription Drugs: 

WTCHP's use of an existing federal prescription drug purchasing 
program might affect responders' access to certain prescription drugs. 
VA's formulary includes 16 of the 29 prescription drugs most 
frequently used by WTC responders in 2010. VA beneficiaries generally 
must obtain approval through their providers to obtain nonformulary 
drugs.[Footnote 53] According to a VA official, however, it may be 
possible to establish an agreement between VA and HHS that would 
result in VA providing all prescription drugs on the NIOSH formulary 
for WTC responders, regardless of whether the drugs are on VA's 
formulary. TRICARE's formulary includes all 29 of the drugs that were 
most frequently used by WTC responders in 2010.[Footnote 54] 
Responders' access to prescription drugs would not be affected by 
WTCHP's enrollment in the 340B program because 340B-enrolled entities 
are generally not precluded from purchasing drugs that are not covered 
by the 340B program.[Footnote 55] However, purchasing drugs that are 
not covered by the 340B program could potentially result in higher 
costs to the entity. 

WTCHP's Use of VA's Prescription Drug Purchasing Program or TRICARE 
Would Require Administrative Changes to Either Program: 

VA and DOD officials told us that use of their drug purchasing 
programs for WTC responders would result in a need for administrative 
changes to their respective programs. VA and DOD officials said that 
new administrative procedures would be needed, for example, for 
verifying that a responder is eligible for their programs' 
prescription benefits. In addition, a VA official said that VA would 
need a method for verifying that only prescription drugs that are 
covered by the WTCHP prescription drug plan are provided to 
responders. Officials were unsure how much time would be required to 
implement these and other administrative changes. 

Agency Comments: 

In written comments, DOD concurred with a draft of this report. HHS 
and VA provided technical comments, which we incorporated as 
appropriate. 

We are sending copies of this report to the Secretaries of HHS, 
Defense, and VA. In addition, the report is available at no charge on 
GAO's Web site at [hyperlink, http://www.gao.gov]. If you or your 
staffs have any questions about this report, please contact me at 
(202) 512-7114 or draperd@gao.gov. Contact points for our Offices of 
Congressional Relations and Public Affairs may be found on the last 
page of this report. GAO staff who made major contributions to this 
report are listed in enclosure II. 

Signed by: 

Debra A. Draper: 
Director, Health Care: 

Enclosures - 2: 

[End of section] 

Enclosure I: Abbreviations: 

CBOC: community-based outpatient clinics: 

CDC: Centers for Disease Control and Prevention: 

CHAMPVA: Civilian Health and Medical Program of the Department of 
Veterans Affairs: 

DCC: Data and Coordination Center: 

DOD: Department of Defense: 

FDCCI: Federal Data Center Consolidation Initiative: 

FDNY: New York City Fire Department: 

HHS: Department of Health and Human Services: 

HRSA: Health Resources and Services Administration: 

IOC: Independent Outpatient Clinic: 

LHI: Logistics Health, Incorporated: 

NIOSH: National Institute for Occupational Safety and Health: 

NYC: New York City NY/NJ New York/New Jersey: 

PBM: Pharmacy Benefit Manager: 

PTSD: post-traumatic stress disorder: 

UMR: United Medical Resources: 

VA: Department of Veterans Affairs: 

VAMC: VA medical center: 

WTC: World Trade Center: 

WTCHP: World Trade Center Health Program: 

[End of section] 

Enclosure II: GAO Contact and Staff Acknowledgments: 

GAO Contact: 

Debra A. Draper, (202) 512-7114 or draperd@gao.gov: 

Acknowledgments: 

In addition to the contact named above, Helene F. Toiv, Assistant 
Director; Nabajyoti Barkakati; George Bogart; Hernan Bozzolo; Amanda 
Cherrin; Anne Hopewell; Mariel Lifshitz; Roseanne Price; and Dan Ries 
made key contributions to this report. 

[End of section] 

Footnotes: 

[1] Pub. L. No. 111-347, § 101, 124 Stat. 3623, 3624 (adding title 
XXXIII, §§ 3301 et seq., to the Public Health Service Act (PHSA), 
codified at 42 U.S.C. §§ 300mm et seq.). In this report, a "responder" 
refers to anyone involved in rescue, recovery, or cleanup activities 
at or near the vicinity of the WTC or the Staten Island site, the 
landfill that was the off-site location of the WTC recovery operation. 
Responders include New York City Fire Department (FDNY) personnel; 
federal government personnel; and other government and private-sector 
workers and volunteers from New York and elsewhere. Other populations 
that may receive WTCHP services include community members (referred to 
as "survivors") and persons who are not eligible responders or 
survivors but who are diagnosed with a WTC-related health condition by 
the WTCHP. 

[2] For a list of the abbreviations used in this report, see enclosure 
I. 

[3] See Congressional Research Service, Comparison of the World Trade 
Center Medical Monitoring and Treatment Program and the World Trade 
Center Health Program Created by Title I of P.L. 111-347, the James 
Zadroga 9/11 Health and Compensation Act of 2010, R41292 (Washington 
D.C.: Jan. 25, 2011). 

[4] In this report, "screening" refers to initial physical and mental 
health examinations of responders. "Monitoring" refers to tracking the 
health of responders over time through follow-up physical and mental 
health examinations. 

[5] The NY/NJ WTC Consortium consisted of five clinical centers in the 
NY/NJ area. The five clinical centers were operated by (1) Mount Sinai 
School of Medicine, (2) Long Island Occupational and Environmental 
Health Center at SUNY, Stony Book, (3) New York University School of 
Medicine/Bellevue Hospital Center, (4) Center for the Biology of 
Natural Systems at CUNY, Queens College, and (5) University of 
Medicine and Dentistry of New Jersey Robert Wood Johnson Medical 
School, Environmental and Occupational Health Sciences Institute. 

[6] The WTCHP is a secondary payer when a responder has a WTC-related 
health condition that is work related and the enrollee has filed an 
applicable workers' compensation claim or a WTC-related health 
condition that is not work related and the enrollee is covered by a 
public or private health insurance plan (with the exception of 
Medicare). Pub. L. No. 111-347, 124 Stat. 3653 (adding PHSA § 3331). 
The workers' compensation exception does not apply when responders are 
covered under a workers' compensation plan administered by New York 
City. 

[7] With one exception, the entities that were awarded contracts for 
operating clinical centers for the WTCHP are the same as those that 
served as clinical centers for the FDNY WTC program and the NY/NJ WTC 
Consortium. NIOSH awarded a contract to the Long Island Jewish Medical 
Center, which did not previously have a contract as a clinical center. 
According to a CDC official, Long Island Jewish Medical Center will 
have a partnership with Queens College, which was a clinical center 
for the NY/NJ WTC Consortium prior to July 1, 2011. The entities 
awarded contracts to operate the data centers for the WTCHP are the 
same as those that served as the DCCs for the FDNY WTC program and the 
NY/NJ WTC Consortium. In addition, NIOSH awarded a task order not to 
exceed $79,830,170 to Computer Sciences Corporation for overall 
program administration, business communications, and information 
systems implementation of the WTCHP. This task order includes the 
services of a pharmacy benefit manager--an entity that negotiates 
rebates and payments with manufacturers, negotiates prices with retail 
pharmacies, and can provide other related administrative and clinical 
services--for the WTCHP's prescription drug plan. 

[8] Pub. L. No. 111-347, 124 Stat. 3657 (adding PHSA § 3351). The act 
specifies that the federal share of the funding for the WTCHP will be 
the lesser of either 90 percent of the actual expenditures each year 
or an amount specified for each year. The act also provides that a 10 
percent NYC share shall be deposited into the WTCHP Fund and that 
disbursements from the WTCHP Fund are conditioned on NYC contracting 
to contribute a 10 percent share of actual expenditures. 

[9] Pub. L. No. 111-347, 124 Stat. 3631, 3646-48 (adding PHSA §§ 
3305(a)(5), 3312(c)(B)(iv), and 3313(d)(2)). The Zadroga Act includes 
an additional GAO mandate requiring an analysis of whether the 
Clinical Centers of Excellence (CCE) with which the WTCHP enters into 
a contract have financial systems that will allow for the timely 
submission of claims data as envisioned by the act. Pub. L. No. 111-
347, 124 Stat. 3633 (adding PHSA § 3305(d)). See GAO, World Trade 
Center Health Program: Administrator's Plans for Evaluating Clinics' 
Capability to Provide Required Data, [hyperlink, 
http://www.gao.gov/products/GAO-11-793R] (Washington, D.C.: Jul. 15, 
2011). 

[10] The WTC Steering Committee consists of the principal 
investigators from each WTC clinical center, the principal 
investigators from each DCC, an external advisory committee 
representative, a chairperson appointed by NIOSH, and other, nonvoting 
members. The WTC Steering Committee was intended to develop and ensure 
compliance with clinical policies and procedures, evaluate protocols 
proposed by the clinical centers, and ensure that studies were 
properly conducted and study results were reported and disseminated to 
the scientific community, including physicians involved in the care of 
WTC responders, in a timely manner. 

[11] LHI designs, implements, and manages occupational health services 
and medical and dental services for the U.S. military and HHS, as well 
as for commercial companies. 

[12] VAMCs provide a wide range of services, including outpatient, 
mental health, and critical care; surgery; and pharmacy. In addition, 
most VAMCs offer additional medical and surgical specialty services, 
such as neurology. A CBOC is associated with, but geographically 
separate from, a parent VAMC, and can provide primary, specialty, 
subspecialty, and mental health care, or any combination of health 
care delivery services that can be appropriately provided in an 
outpatient setting. Other outpatient clinics in the VA health system 
include IOCs, which are freestanding ambulatory care clinics. In 
contrast to CBOCs, IOCs are not associated with VAMCs. 

[13] We calculated the straight-line distance between ZIP codes and 
did not account for factors that might affect travel distances or 
travel time. 

[14] The seven prescription drug plans included those of the FDNY WTC 
program, each of the five clinical centers of the NY/NJ WTC 
Consortium, and the WTC National Responder Health Program. 

[15] TRICARE is a regionally structured program that uses contractors 
to maintain provider networks to complement health care provided at 
military treatment facilities. The 340B Drug Pricing Program provides 
eligible entities, such as health centers and hospitals that provide 
comprehensive health care services for a high proportion of low-income 
patients, with access to discounted drug prices. 

[16] We included the federal prescription drug purchasing programs for 
which an arrangement with HHS to provide prescription drugs to WTC 
responders seemed the most feasible. 

[17] A formulary is a list of drugs that a health care organization 
has determined to be the most medically appropriate and cost-effective 
for its patient population. 

[18] To identify the drugs that were on the formularies used by VA and 
TRICARE and were available through the 340B program, we used the VA 
National Formulary published on its Web site in January 2011 (accessed 
March 10, 2011), the TRICARE Formulary Search Tool available on DOD's 
Web site (accessed June 2, 2011), and the 340B Prime Vendor Program 
Catalog (accessed May 17, 2011). According to HRSA, the 340B Prime 
Vendor Program Catalog does not include all prescription drugs 
available through the 340B Drug Pricing Program. 

[19] See Department of Defense Appropriations Act, 2006, Pub. L. No. 
109-148, § 5011(b), 119 Stat. 2680, 2814 (2005). 

[20] Since November 2002, NIOSH has implemented various forms of a 
national program for responders outside the NYC area, although no 
program existed from August 2004 until June 2005. See GAO, September 
11: HHS Needs to Ensure the Availability of Health Screening and 
Monitoring for All Responders, GAO-07-892 (Washington, D.C.: Jul. 23, 
2007). 

[21] According to NIOSH, responders who meet eligibility criteria can 
be enrolled in the program; however, not all individuals participate 
in their respective programs after enrolling. 

[22] NIOSH reports current data on the numbers of responders screened, 
monitored, and treated on its Web site: [hyperlink, 
http://www.cdc.gov/niosh/topics/wtc/census.html] (accessed June 17, 
2011). 

[23] FDNY's Bureau of Health Services provides health services for all 
FDNY employees and also provided screening, monitoring, and treatment 
services for the FDNY WTC program. 

[24] Pub. L. No. 111-347, 124 Stat. 3630 (adding PHSA § 3305(a)(2)). 

[25] GAO, September 11: World Trade Center Health Programs Business 
Process Center Proposal and Subsequent Data Collection, [hyperlink, 
http://www.gao.gov/products/GAO-11-243R] (Washington, D.C.: Dec. 3, 
2010). 

[26] GAO, Opportunities to Reduce Potential Duplication in Government 
Programs, Save Tax Dollars, and Enhance Revenue, [hyperlink, 
http://www.gao.gov/products/GAO-11-318SP] (Washington, D.C.: Mar. 1, 
2011) and GAO, Opportunities to Reduce Potential Duplication in 
Government Programs, Save Tax Dollars, and Enhance Revenue, 
[hyperlink, http://www.gao.gov/products/GAO-11-441T] (Washington D.C.: 
Mar. 3, 2011). 

[27] Office of Management and Budget, Memorandum for Chief Information 
Officers: Update on the Federal Data Center Consolidation Initiative 
(Washington, D.C.: October 2010). 

[28] [hyperlink, http://www.gao.gov/products/GAO-11-318SP]. 

[29] According to NIOSH, about 3,700 responders had been screened by 
the WTC National Responder Health Program as of March 31, 2011. 

[30] UMR is a subsidiary of UnitedHealthcare (a UnitedHealth Group 
company). UMR provides integrated health benefit management for 
dental, vision, disability, and medical plans. Under the subcontract, 
UMR reviews claims and responders have access to treatment services 
through UnitedHealthcare's national network of health providers. 

[31] Pub. L. No. 111-347, 124 Stat. 3647 (adding PHSA § 3313). NIOSH 
officials told us that the agency will use LHI to meet the 
requirements of the act in the near term. Under the Zadroga Act, 
responsibilities for providers participating in the national network 
include collecting and reporting data in accordance with specified 
standards; following certain monitoring, screening, and treatment 
protocols; and meeting criteria for credentialing to be established by 
data centers. In addition to responders, community members (referred 
to as "survivors") will be eligible for services in the national 
network. 

[32] Not all veterans, however, have the same priority for receiving 
health services in VA facilities. Veterans are assigned to priority 
groups based on certain factors, such as service-connected disability 
status and income. 

[33] One of the Consortium's clinical centers did not independently 
contract with a PBM and provided prescription drugs to WTC responders 
through an in-house pharmacy. Of the remaining six WTC prescription 
drug plans, three plans received discounts from retail pharmacies or 
rebates from manufactures through their PBMs and three plans did not. 

[34] Pub. L. No. 111-347, 124 Stat. 3646 (adding PHSA § 3312(c)(1)(B)). 

[35] Some federal programs set ceiling prices, others establish prices 
by referencing prices negotiated by private payers in the commercial 
market, and others rely on negotiations with manufacturers, either 
directly or through private health plans. See GAO, Prescription Drugs: 
An Overview of Approaches to Negotiate Drug Prices Used by Other 
Countries and U.S. Private Payers and Federal Programs, GAO-07-358T 
(Washington, D.C.: Jan. 11, 2007). 

[36] The formulary does not apply to the CHAMPVA program. 

[37] Entities eligible to enroll in the 340B Drug Pricing Program are 
specified in statute and include certain health centers and hospitals 
that provide comprehensive health care services for a high proportion 
of low-income patients, as well as programs that serve patients with 
specific conditions or diseases. See 42 U.S.C. § 256b(a)(4). Not all 
eligible entities choose to enroll in the program. The categories of 
entities that are eligible to participate in the program have been 
expanded over time. 

[38] The WTC responder health programs were not independently eligible 
for the 340B Drug Pricing Program. The Bellevue and Mt. Sinai clinical 
centers are located within hospitals that meet current eligibility 
criteria and are enrolled in the program. 

[39] Chief Information Officers Council, Memorandum for Chief 
Information Officers: Federal Data Center Consolidation Initiative 
Initial Plans, [hyperlink, 
http://cio.gov/documents/fddci-initial-plan-memo-5-26.pdf] (accessed 
June 24, 2011); and Chief Information Officers Council, Cracking Down 
on Wasteful, Duplicative Spending, [hyperlink, 
http://www.cio.gov/pages.cfm/page/Cracking-Down-on-Wasteful-
Duplicative-Spending] (accessed May 9, 2011). 

[40] [hyperlink, http://www.gao.gov/products/GAO-11-318SP], p. 67-68. 

[41] Ibid. 

[42] For example, in September 2010, the Office of Inspector General 
in the Department of Homeland Security, a federal agency involved in 
the FDCCI, reported that the department's consolidation efforts would 
cost about $560 million. See U.S. Department of Homeland Security. 
Office of Inspector General, Management of DHS' Data Center 
Consolidation Initiative Needs Improvement (Washington, D.C.: 
September 2010), 5. 

[43] If access to data were lost it would be difficult for researchers 
to conduct analyses examining the progression of WTC-related 
conditions in responder populations over time. 

[44] [hyperlink, http://www.gao.gov/products/GAO-11-318SP], p. 67. 

[45] As of March 19, 2011, the NY/NJ WTC Consortium DCC database 
included ZIP codes and states for 4,368 of the 4,621 WTC responders 
living outside the NYC area. We conducted our analysis on these 4,368 
responders. 

[46] As of September 30, 2010, VA's database included 739 CBOCs and 5 
IOCs. For this analysis, we included the IOCs with the CBOCs. 

[47] According to VA officials, larger CBOCs are required by VA to 
have on-site mental health services, and other CBOCs use telehealth to 
offer such services. Telehealth services are provided from a distance 
using telecommunications technologies, such as videoconferencing. 

[48] Some responders might be able to continue seeing their LHI or 
UnitedHealthcare provider. According to VA officials, it might be 
possible to provide some responders with access to non-VA providers on 
a fee-for-service basis if they do not live near a VA facility or 
cannot access services in nearby VA facilities. 

[49] See 38 U.S.C. § 8126(a)(2), (c), (d). 

[50] NIOSH awarded a task order to Computer Sciences Corporation that 
includes the services of a pharmacy benefit manager to administer the 
prescription drug benefit for all of the WTCHP responders in the NYC 
area. A NIOSH official told us that the PBM will negotiate rebates 
with manufacturers and drug prices with retail pharmacies as part of 
its contract with NIOSH. The official told us that prescription drugs 
for WTC responders residing outside the NYC area will continue to be 
provided through the LHI contract in the near term. The PBM used by 
LHI currently negotiates rebates with manufacturers and drug prices 
with retail pharmacies for the WTC National Responder Health Program. 

[51] It is uncertain whether an in-house pharmacy option will be 
available through the WTCHP. 

[52] A VA official told us that some CBOCs have contracts with retail 
pharmacies for VA beneficiaries to access prescription medications in 
an emergency and that a small number of prescriptions are filled this 
way. 

[53] VA fills prescriptions for nonformulary drugs for CHAMPVA 
beneficiaries without prior approval. 

[54] TRICARE's formulary includes all 29 of the drugs that were most 
frequently used by WTC responders in 2010; however, either prior 
authorization or proof of medical necessity is required to obtain 6 of 
the 29 drugs. 

[55] Twenty-eight of the 29 prescription drugs most frequently used by 
WTC responders in 2010 were 340B-covered drugs. 

[End of section] 

GAO's Mission: 

The Government Accountability Office, the audit, evaluation and 
investigative arm of Congress, exists to support Congress in meeting 
its constitutional responsibilities and to help improve the performance 
and accountability of the federal government for the American people. 
GAO examines the use of public funds; evaluates federal programs and 
policies; and provides analyses, recommendations, and other assistance 
to help Congress make informed oversight, policy, and funding 
decisions. GAO's commitment to good government is reflected in its core 
values of accountability, integrity, and reliability. 

Obtaining Copies of GAO Reports and Testimony: 

The fastest and easiest way to obtain copies of GAO documents at no 
cost is through GAO's Web site [hyperlink, http://www.gao.gov]. Each 
weekday, GAO posts newly released reports, testimony, and 
correspondence on its Web site. To have GAO e-mail you a list of newly 
posted products every afternoon, go to [hyperlink, http://www.gao.gov] 
and select "E-mail Updates." 

Order by Phone: 

The price of each GAO publication reflects GAO’s actual cost of
production and distribution and depends on the number of pages in the
publication and whether the publication is printed in color or black and
white. Pricing and ordering information is posted on GAO’s Web site, 
[hyperlink, http://www.gao.gov/ordering.htm]. 

Place orders by calling (202) 512-6000, toll free (866) 801-7077, or
TDD (202) 512-2537. 

Orders may be paid for using American Express, Discover Card,
MasterCard, Visa, check, or money order. Call for additional 
information. 

To Report Fraud, Waste, and Abuse in Federal Programs: 

Contact: 

Web site: [hyperlink, http://www.gao.gov/fraudnet/fraudnet.htm]: 
E-mail: fraudnet@gao.gov: 
Automated answering system: (800) 424-5454 or (202) 512-7470: 

Congressional Relations: 

Ralph Dawn, Managing Director, dawnr@gao.gov: 
(202) 512-4400: 
U.S. Government Accountability Office: 
441 G Street NW, Room 7125: 
Washington, D.C. 20548: 

Public Affairs: 

Chuck Young, Managing Director, youngc1@gao.gov: 
(202) 512-4800: 
U.S. Government Accountability Office: 
441 G Street NW, Room 7149: 
Washington, D.C. 20548: